Friday, April 15, 2011

APRIL 2011 Support Group Meeting

HELLO EVERYONE: Hasn't this weather been wonderful! If only it would stay like this through the summer. Hope all of you did something really fun last month on our meeting off. Cause we're back. We have some really interesting things to talk about this meeting. So you will want to be there so you can add your 2 cents worth. First and foremost - OUR MEETING TIME HAS CHANGED. OUR NEW MEETING TIME WILL BE FROM 1:00PM - 3:00PM. This decision was made not only for the reason that Clinical Nurse Joanie Cacciola and Dr. Peter Nakaji could better attend, but also due to the fact that a St.Joes OP Rehab's faculty member needs to use the Conference Rm during our old time slot on Thursdays. Every thing else remains the same: What: AZ Syringo & Chiari Support Group When: Third Thursday of the Month - April 21, 2011 Time: 1:00pm - 3:00pm Where: St. Joseph's Outpatient Rehabilitation 114 W. Thomas Rd. (sw corner of Thomas & 1st Ave.) Conference Rm. The main topic of this meeting will be presented by our very own Beth Wells. She is going to discuss our participation in the upcoming Conquer Chiari's "Walk Across America" walk scheduled for September 17, 2011. In 2008 our Support Group had the great experience of representing Conquer Chiari by hosting this walk in the Phoenix area. Also by working with a State Congressman we were able to have the Month of September declared as Chiari Malformation Recognition Month. Now we are looking forward to doing it again in 2011 and we are gonna have to listen up and find out what our marching orders are going to be and go forth! If you are unable to attend our meeting you can still reach Beth and her son Brandon at to volunteer. And we always NEED VOLUNTEERS and CORPORATE SPONSORSHIPS and plain ol' WALK SIGN UPS TO WALK. Also Dianna Contreras is going to start researching the set up of evening meeting for those of you who are unable to come to the day time meetings. These meetings will mirror our Thursday day meetings so everyone will always remain in the loop. If you have any questions, Dianna can be contacted at We all know how much this is needed, so thank you. There you have it. WE LOOK FORWARD TO SEEING ALL OF YOU AT THE MEETING, THURSDAY, APRIL 21ST, AT 1:00PM Thank you Shelley & Kathie

No comments: